Patient groups outside of Canada
In some cases, patient organisations outside of Canada may wish to connect with the CSPA and our patients. These disease-specific organizations who wish to become a CSPA Global Collaborator must meet some basic criteria.
Current Global Collaborators
Basal Cell Carcinoma Nevus Syndrome Life Support Network: www.bccns.org
The mission of the Basal Cell Carcinoma Nevus Syndrome(BCCNS) Life Support Network is to promote access to the most effective and appropriate treatments for individuals with the condition. The Network is dedicated to providing support, counseling and educational programming for affected children and adults as well as family members and caregivers.
The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person affected by cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research. We offer programming for both the newly-diagnosed patient and those who have been living with their diagnosis for a long time, providing information that can help improve and maintain quality of life while living with cutaneous lymphoma. We exist to make sure that each person with cutaneous lymphoma gets the best care possible.
NOAH (National Organization for Albinism and Hypopigmentation) is a genetic support group that acts as a conduit for accurate and authoritative information about all aspects of living with albinism. NOAH sponsors conferences, meetings and camps where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship. Information sources provided by NOAH include an extensive website, an online resource library, a quarterly magazine, two parent books and a library of videos on YouTube.
The PRP (Pityriasis Rubra Pilaris) Alliance is a 501(c)(3), nonprofit, patient advocacy organization. Our mission is to advocate for the timely and accurate diagnosis of pityriasis rubra pilaris (PRP), the implementation of more effective and accessible treatment options, and an increase in PRP-specific research.
Skin Sri Lanka
SKIN SRI LANKA is the first national non-profit organization dedicated to advocate, educate and support SriLankan’s living with skin-related diseases, conditions and traumas. By working together, we advocate for the needs of skin patients across the Island and provide a broad range of education and support.
The Cuban Vitiligo Support and Research Group mission is:
- Providing psychological support to patients and families in order to face life positively.
- Investigating and collaborating with research projects aimed at finding a cure for vitiligo\
- Raising awareness of the disease significance in the population to avoid any kind of discrimination due to the condition.