The Canadian Skin Patient Alliance (CSPA) has allocated funds to support upcoming outreach activities of our Affiliate Members. Eligible projects include but are not limited to websites, pamphlets, newsletters and endeavours that serve to raise visibility or awareness. The CSPA supports these initiatives as part of its mandate to raise awareness of skin diseases, conditions and traumas for all Canadians, and to assist organizations who can provide targeted support for specific needs and populations.

About Tanny Nadon: In 2016, the dermatology community mourned the loss of Tanny Nadon. She was an inaugural member of the CSPA Board of Directors and a founding member of the Alberta Society of Melanoma, which became an Affiliate Member of the CSPA. The CSPA Board is proud to name this grant in Tanny’s honour.

Application guidelines:

  • All CSPA Affiliate Members are eligible to apply for a Tanny Nadon Affiliate Grant.
  • Deadline for applications is by 5:00 p.m. EDT on April 1st and October 1st of each year (NB – there are two separate review cycles each year).
  • The maximum amount of any single grant will be $3,000.
  • CSPA will provide a maximum of $6,000 per calendar year for this program.
  • All applications will be assessed based on individual merit, though some priority will be given to applications from Affiliate Members who have not previously benefited from this program.
  • Affiliate Members who have benefited from this program can reapply 12 months following receipt of a grant.
  • The grants will be announced within 8-12 weeks following each deadline date.

Terms of receiving a CSPA Affiliate Grant:

  • Values and principles of the project must be in line with those of the CSPA.
  • Projects and initiatives must be in the future (exception: updates to website or documentation).
  • The project activities should not involve advertising or promotion of a specific product or company.
  • If treatment options are mentioned, they must be referred to as part of a drug class or type of product (vs. brand name), unless all brand names of a drug class are mentioned without bias.
  • There should be no recommendations for treatments, other than suggesting that readers consult a health care provider.
  • Where possible, outreach should be conducted in both official languages.
  • All aspects of the project should adhere to the highest ethical standards.
  • The winning organization must credit the CSPA as a financial supporter of the project.
  • Sign-off prior to launch or printing is required if any project materials or documents will include the CSPA logo.

For more information about the Tanny Nadon Affiliate Grant, please contact Diane Christin, Manager of Stakeholder Relations at: This email address is being protected from spambots. You need JavaScript enabled to view it. or 1-613-864-0745.

Past Winners:

2019 - April The Alberta Society of Melanoma
2018 - October

Canadian Alopecia Areata Foundation (CANAAF) 

2018 - April

Scleroderma Society of Canada

2017 - October

Canadian Skin Cancer Foundation

2017 - April

Canadian Burn Survivors Community 

2016 - October

Save Your Skin

2016 - April

Scleroderma Association of BC.

2015 - October

Canadian Skin Cancer Foundation

 

The CSPA serves as an umbrella organization for Canadian not-for-profit patient groups and organizations that deal with skin conditions and diseases. By working together, we can strongly advocate for the needs of skin patients across the country and provide comprehensive education and support.  

Organizations or local support groups who join the CSPA benefit greatly by sharing information and a wider audience. Skin patients and their families benefit by becoming part of a bigger community and gaining access to information about treatment, care and research in skin disease.

If you have any questions or would like more information about the benefits of being an Affiliate, please contact Diane Christin, Manager of Stakeholder Relations at This email address is being protected from spambots. You need JavaScript enabled to view it. or 1-613-864-0745

Current Affiliate Members

A number of organizations work together with us to improve the lives of skin patients and their families in Canada. They are:

AboutFace

aboutfaceWe’re here for advice and support. We provide education and we’re a useful source of information. And we also see it as our role to generate as much public awareness and understanding of what living with a facial difference means to those affected. We had to sum up what AboutFace:

AboutFace ENCOURAGES – We believe knowing you are not alone is the first step in embracing the journey.

AboutFace EMPOWERS – We believe building on strength and character helps develop a sense of purpose.

AboutFace EDUCATES – We believe education is critical to nurturing understanding and acceptance.


Alberta Lymphedema Association

Alberta Lymphedema IMAGEThe Alberta Lymphedema Association (ALA) is a charitable organization founded in 2003 by a team of people who recognized the need to help people living with, or at risk of, lymphedema. A learning association committed to the ongoing education of its stakeholders, ALA works to make a difference and empower affected individuals and their families to help manage this condition. ALA works from the patient standpoint.


Alberta Society of Melanoma

The Alberta Society of Melanomaasmlogo is an organization dedicated to educating the public regarding all forms of skin cancer, not just melanoma.  We also provide support and information to patients and families dealing with a skin cancer diagnosis. 


Acne and Rosacea Society of Canada

Acne and Rosacea Society of Canada logo EngThe Acne and Rosacea Society of Canada’s mission is to improve the lives of 7 million Canadians suffering from acne and rosacea by raising awareness and by providing independent, reputable information. Our society comprises dermatologists, educators, communicators and patients. Since acne and rosacea appear on the face in most people and affect appearance, there can be significant emotional distress in addition to the visible signs. There may also be permanent skin damage such as scarring.

For in-depth information on acne please visit our website www.AcneAction.ca (bilingual). For information on rosacea, please see our www.RosaceaHelp.ca site.  


BC Lymphedema Association

The BC Lymphedema AssociationBC lymp is the provincial resource for promoting healthy and hopeful living with lymphedema.   Our goals are to build awareness across BC and provide information about lymphedema and available treatment/management options.


Canadian Alopecia Areata Foundation

canaafOn behalf of Canadians who have been diagnosed with alopecia areata, the Canadian Alopecia Areata Foundation supports those affected by alopecia areata, promotes awareness and education of this auto-immune disease and raises funds for research.


 Canadian Burn Survivors Community

cbsc

   www.canadianburnsurvivors.ca


Canadian Association for Porphyria

cap logo RGBThe mission of the Canadian Association for Porphyria/Association Canadienne de Porphyrie is:

  • to deliver evidence-based information and support to patients with porphyria, their families, health care providers and the general public across Canada
  • to achieve standards and evidence-based comprehensive care for all people with porphyria throughout their lifespans.
 

Canadian Association of Scarring Alopecias

CASA Fired Up is the Canadian Association of Scarring Alopecias. We are a support group that gives people with Cicatricial Alopecias a place to belong. Twitter handle: @Casafiredup


Canadian Psoriasis Network

CPN Logo 150We are the Canadian Psoriasis Network (CPN). Our goal is to improve the quality of life of all Canadians who are living with psoriasis and psoriatic arthritis while vigorously pursuing a cure. Our mission is to provide all current information on treatment and continuing care through education, outreach, research and leading by example.


Canadian Skin Cancer Foundation

The Canadian Skin Cancer Foundationcanadian skin cancer logo has a vision: a world without skin cancer! Because skin cancer is a highly preventable disease we believe we can achieve this vision through education around awareness around prevention and early detection. Our mission statement is: To prevent and eradicate skin cancer through education, awareness, advocacy and research.


DEBRA Canada

DEBRA Canada debraobjectives include patient programs, education, and the creation of awareness about this rare disorder.   DEBRA Canada is a voluntary, registered, non-profit organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging disease.   


Eczema Society of Canada

Eczema Society of Canada ESC LOGO TMMC15(ESC) is a registered Canadian charity dedicated to improving the lives of Canadians living with eczema.  Our mandate includes eczema education, support, raising awareness and research.  To find help living with eczema, contact us.  We're here to help.


Fire Fighters Burn Fund

ffbfThe Firefighters Burn Fund was created in March 1978 and is a registered charitable organization, duly incorporated in the Province of Manitoba. Originally organized by Winnipeg firefighters, the Burn Fund now involves and is supported by members of the Fire Service throughout Manitoba.

The Firefighters Burn Fund is a volunteer-run organization. No salaries are paid to any Board Member or volunteer. The Burn Fund is not a member agency of The United Way, nor does it receive government grants. Therefore, we rely entirely on donations and proceeds from fundraising activities.

The Burn Fund supports ongoing educational opportunities for members of the Burn Team (Nurses, Occupational Therapists, Physiotherapists). This includes continuing educational seminars, conferences, developing research skills, etc.


HS Aware 

HS Aware HS Aware Logo 1is a not-for-profit organization committed to raising awareness of Hidradenitis Suppurativa (HS) among patients, healthcare professionals and the general public. We are motivated by a single-minded purpose: Relieving the suffering of those living with HS


Melanoma Network of Canada

MNCThe Melanoma Network of Canada (MNC) provides support services, information and programs for individuals whose lives have been changed by melanoma. MNC provides the leading national voice for melanoma patients in Canada for better early detection and improved treatment access and works diligently to prevent more Canadians from developing melanoma through public awareness and youth and adult education on sun safety.  Charitable Registration number: 854913050RR0001


Myositis Canada

myositisMyositis Canada is a non-profit agency formed in 2015 by people with myositis who wanted an agency dedicated to improving the lives of people affected by myositis. Our mission is a world where each new case of myositis is diagnosed and cured within months, and where full rehabilitation from myositis damage is routine.

Myositis describes inflammation or swelling of the muscle tissue. Dermatomyositis includes inflammation of the muscles and the skin. DM is the easiest type of myositis to diagnose because it typically has a visible skin rash caused by inflammation of blood vessels under the skin. The DM rash looks patchy and reddish or purple and is found on the eyelids, elbows, knees and knuckles. Additional rashes may occur on the cheeks, nose, back and upper chest. Some people also have calcinosis, hardened little bumps under the skin. There is a sub-type of DM where the person affected only suffers from inflammation of the skin with no muscle involvement. 
 

Neurofibromatosis Society of Ontario

Neurofibromatosis OntarioNFONLogo 4C raises awareness and supports individuals living with neurofibromatosis (NF) in Ontario. We hold meetings and social events to bring individuals with NF and speakers from the medical community together. We provide a safe environment in person and virtually through social media to provide individuals with NF an opportunity to meet others with this condition and access information.  Through donations received, we also fund NF research.


Save Your Skin Foundation

SYSF Logo Eng Fre CMYKThe Save Your Skin Foundation is a national not-for-profit organization dedicated to the areas of skin cancer and skin disease with a focus on education and awareness, research and program development, patient support and ensuring equal and timely access to treatment for all Canadians. Please visit www.saveyourskin.ca for more information.


Scleroderma Association of B.C.

The Scleroderma Association of B.C.Logo BC COUL promotes patient outreach, support and education as well as create public awareness.  We also continue to raise money for research locally and across Canada. www.sclerodermabc.ca


Scleroderma Canada 

SSC logoScleroderma Canada serves as an advocate nationally for those affected by scleroderma, and works collaboratively with regional scleroderma organizations and the international scleroderma community to achieve common objectives. We are committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure. 


Scleroderma Society of Ontario

The Scleroderma Society of Ontario 5654c7f1461fdSSO Logo 2015is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.


Stevens-Johnson Syndrome Canada

SJS Canada’ssjs tens vision is to facilitate an umbrella of services for the SJS/TEN patient community in Canada, through health promotion by providing people suffering from Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN), their families and caregivers with access to related counselling, education, support groups and information programs

 

Affiliated groups are encouraged to submit news items for posting on the CSPA website. Please submit information to This email address is being protected from spambots. You need JavaScript enabled to view it.. News items will be posted for 60 days on the CSPA home page. Please allow two days for approval and posting.

Note: If you wish to have your news published in French. Please provide the translation of extensive documentation. Short news items can be sent in English only if translation services are not an option.

Are you involved with a skin-patient support group? Would you like your group to be part of the CSPA network and benefit from everything belonging offers? Large or small, every group that is not-for-profit and patient-focused is welcome. Joining is free!

Contact Diane Christin, Manager Stakeholder Relations at This email address is being protected from spambots. You need JavaScript enabled to view it. or 1-613-864-0745 to discuss the benefits of having your organization join the Canadian Skin Patient Alliance, or request an application form at This email address is being protected from spambots. You need JavaScript enabled to view it. to start the process.

Application as a CSPA Affiliate Member or as a CSPA Global Collaborator

If your group would like to join the CSPA as an Affiliate Member, please read the requirements section below, then request the application form at This email address is being protected from spambots. You need JavaScript enabled to view it.. If you are interested in joining as a Global Collaborator please read the requirements then request the application form at This email address is being protected from spambots. You need JavaScript enabled to view it..  We will get back to you as soon as possible. If you have any questions please feel free to contact us. 

Requirements

A CSPA Affiliate Member is a federally or provincially incorporated not-for-profit organization or registered charity that exists to help Canadians deal with a skin condition(s) and/or disease(s) by providing support, education, information, and/or undertaking or supporting fundraising, research and/or advocacy on their behalf that has been accepted by the Board of the CSPA for membership.

As a matter of policy, which is designed to maintain the CSPA’s good standing in the community, the CSPA invites only organizations who share its vision and its approach to carrying on its affairs. Of particular importance to the CSPA and its stakeholders are the following:

  • Patient-focused programming and initiatives
  • Transparency
  • Fiscal responsibility/transparency
  • Unbiased neutrality with respect to recommendations for treatments for diseases (No direct advertising for sponsors’ products in any materials or websites.)
  • A functioning governance model with structured clinical advice from a relevant health-care professional or team
  • The organization cannot be solely funded by a single commercial entity

Please request an application for acceptance as a CSPA affiliated organization at This email address is being protected from spambots. You need JavaScript enabled to view it..

 

 


The CSPA provides a wide range of materials to help affiliate groups manage their day-to-day activities and prepare for new initiatives.

  • CSPA material is also available for your event and/or membership:
  • Email us at This email address is being protected from spambots. You need JavaScript enabled to view it.. Please provide the quantity required, the date of your event (if applicable) and a shipping address. 

 

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