The CSPA serves as an umbrella organization for Canadian not-for-profit patient groups and organizations that deal with skin conditions and diseases. By working together, we can strongly advocate for the needs of skin patients across the country and provide comprehensive education and support.  

Organizations or local support groups who join the CSPA benefit greatly by sharing information and a wider audience. Skin patients and their families benefit by becoming part of a bigger community and gaining access to information about treatment, care and research in skin disease.

If you have any questions or would like more information about the benefits of being an Affiliate, please contact Diane Christin, Manager of Stakeholder Relations at This email address is being protected from spambots. You need JavaScript enabled to view it. or 1-613-864-0745

Current Affiliates

A number of organizations work together with us to improve the lives of skin patients and their families in Canada. They are:

AboutFace

aboutfaceWe’re here for advice and support. We provide education and we’re a useful source of information. And we also see it as our role to generate as much public awareness and understanding of what living with a facial difference means to those affected. We had to sum up what AboutFace:

AboutFace ENCOURAGES – We believe knowing you are not alone is the first step in embracing the journey.

AboutFace EMPOWERS – We believe building on strength and character helps develop a sense of purpose.

AboutFace EDUCATES – We believe education is critical to nurturing understanding and acceptance.


Alberta Society of Melanoma

The Alberta Society of Melanomaasmlogo is an organization dedicated to educating the public regarding all forms of skin cancer, not just melanoma.  We also provide support and information to patients and families dealing with a skin cancer diagnosis. 


Acne and Rosacea Society of Canada

Acne and Rosacea Society of Canada logo EngThe Acne and Rosacea Society of Canada’s mission is to improve the lives of 7 million Canadians suffering from acne and rosacea by raising awareness and by providing independent, reputable information. Our society comprises dermatologists, educators, communicators and patients. Since acne and rosacea appear on the face in most people and affect appearance, there can be significant emotional distress in addition to the visible signs. There may also be permanent skin damage such as scarring.

For in-depth information on acne please visit our website www.AcneAction.ca (bilingual). For information on rosacea, please see our www.RosaceaHelp.ca site.  


BC Lymphedema Association

The BC Lymphedema AssociationBC lymp is the provincial resource for promoting healthy and hopeful living with lymphedema.   Our goals are to build awareness across BC and provide information about lymphedema and available treatment/management options.


Canadian Alopecia Areata Foundation

canaafOn behalf of Canadians who have been diagnosed with alopecia areata, the Canadian Alopecia Areata Foundation supports those affected by alopecia areata, promotes awareness and education of this auto-immune disease and raises funds for research.


 Canadian Burn Survivors Community

cbsc

   www.canadianburnsurvivors.ca


Canadian Association of Porphyria

cap logo RGBThe mission of the Canadian Association for Porphyria/Association Canadienne de Porphyrie is:

  • to deliver evidence-based information and support to patients with porphyria, their families, health care providers and the general public across Canadato
  • achieve standards and evidence-based comprehensive care for all people with porphyria throughout their lifespans.
 

Canadian Association for Scarring Alopecias

CASA Fired Up is the Canadian Association of Scarring Alopecias. We are a support group that gives people with Cicatricial Alopecias a place to belong. Twitter handle: @Casafiredup


Canadian Psoriasis Network

CPN Logo 150We are the Canadian Psoriasis Network (CPN). Our goal is to improve the quality of life of all Canadians who are living with psoriasis and psoriatic arthritis while vigorously pursuing a cure. Our mission is to provide all current information on treatment and continuing care through education, outreach, research and leading by example.


Canadian Skin Cancer Foundation

The Canadian Skin Cancer Foundationcanadian skin cancer logo has a vision: a world without skin cancer! Because skin cancer is a highly preventable disease we believe we can achieve this vision through education around awareness around prevention and early detection. Our mission statement is: To prevent and eradicate skin cancer through education, awareness, advocacy and research.


DEBRA Canada

DEBRA Canada debraobjectives include patient programs, education, and the creation of awareness about this rare disorder.   DEBRA Canada is a voluntary, registered, non-profit organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging disease.   


Eczema Society of Canada

Eczema Society of Canada ESC LOGO TMMC15(ESC) is a registered Canadian charity dedicated to improving the lives of Canadians living with eczema.  Our mandate includes eczema education, support, raising awareness and research.  To find help living with eczema, contact us.  We're here to help.


Fire Fighters Burn Fund

ffbfThe Firefighters Burn Fund was created in March, 1978 and is a registered charitable organization, duly incorporated in the Province of Manitoba. Originally organized by Winnipeg firefighters, the Burn Fund now involves and is supported by members of the Fire Service throughout Manitoba.

The Firefighters Burn Fund is a volunteer run organization. No salaries are paid to any Board Member or volunteer. The Burn Fund is not a member agency of The United Way, nor does it receive government grants. Therefore, we rely entirely on donations and proceeds from fundraising activities.

The Burn Fund supports ongoing educational opportunities for members of the Burn Team (Nurses, Occupational Therapists, Physiotherapists). This includes continuing educational seminars, conferences, developing research skills, etc.


HS Aware 

HS Aware HS Aware Logo 1is a not-for-profit organization committed to raising awareness of Hidradenitis Suppurativa (HS) among patients, healthcare professionals and the general public. We are motivated by a single-minded purpose: Relieving the suffering of those living with HS


Neurofibromatosis Society of Ontario

Neurofibromatosis OntarioNFONLogo 4C raises awareness and supports individuals living with neurofibromatosis (NF) in Ontario. We hold meetings and social events to bring individuals with NF and speakers from the medical community together. We provide a safe environment in person and virtually through social media to provide individuals with NF an opportunity to meet others with this condition and access information.  Through donations received, we also fund NF research.


Save Your Skin Foundation

SYSF Logo Eng Fre CMYKThe Save Your Skin Foundation is a national not-for profit organization dedicated to the areas of skin cancer and skin disease with a focus on education and awareness, research and program development, patient support and ensuring equal and timely access to treatment for all Canadians. Please visit www.saveyourskin.ca for more information.


Scleroderma Association of British Columbia

The Scleroderma Association of BCscleroderma logo colour promotes patient outreach, support and education as well as create public awareness.  We also continue to raise money for local research.


Scleroderma Society of Canada 

SSC logoThe Scleroderma Society of Canada serves as an advocate nationally for those affected by scleroderma, and works collaboratively with regional scleroderma organizations and the international scleroderma community to achieve common objectives. We are committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure. 


Scleroderma Society of Ontario

The Scleroderma Society of Ontario 5654c7f1461fdSSO Logo 2015is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.


Stevens-Johnson Syndrome Canada

sjs logo text onlySJS Canada’s vision is to facilitate an umbrella of services for the SJS/TEN patient community in Canada, through health promotion by providing people suffering from Stevens Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN), their families and caregivers with access to related counselling, education, support groups and information programs

 

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