Community Links
Community Links: To learn even more about particular skin diseases and conditions and to gather more resources and support, investigate the organizations listed below. Click on the title of the organization to be linked to its website.
General skin health and educational sites:
DrugCoverage.ca - Your guide to reimbursement for prescription medications in Canada
Patient support sites listed alphabetically by condition:
Acne Support Group - StopSpots.org
Acne Support Group - StopSpots.org
National Organization for Albinism and Hypopigmentation (NOAH)
National Alopecia Areata Foundation (NAAF)
Bald Girls Do Lunch - Alopecia Areata
American Behcet's Disease Association
Basal Cell Carcinoma Nevus Syndrome/Gorlin Syndrome (BCCNS Life Support Network)
Cicatricial Alopecia Research Foundation (CARF)
National Alopecia Areata Foundation (NAAF)
Bald Girls Do Lunch - Alopecia Areata
American Behcet's Disease Association
Basal Cell Carcinoma Nevus Syndrome/Gorlin Syndrome (BCCNS Life Support Network)
Cicatricial Alopecia Research Foundation (CARF)
Cutaneous Lymphoma Foundation
Myositis Assocation (Dermatomyositis)
Dermatitis Herpetiformis (Gluten Intolerance Group)
Dystrophic Epidermolysis Bullosa Research (DebRA of America, Inc.)
National Foundation for Ectodermal Dysplasias (NFED)
National Eczema Association (NEA)
National Eczema Society
Epidermolysis Bullosa Medical Research Foundation
Ehlers-Danlos National Foundation (EDNF)
Hidradenitis Suppurativa Foundation
Foundation for Ichthyosis and Related Skin Types (F.I.R.S.T.)
Inconitentia Pigmenti International Foundation
Inflammatory Skin Disease Institute (ISDI)
The Klippel-Trenaunay Syndrome Support Group
Myositis Assocation (Dermatomyositis)
Dermatitis Herpetiformis (Gluten Intolerance Group)
Dystrophic Epidermolysis Bullosa Research (DebRA of America, Inc.)
National Foundation for Ectodermal Dysplasias (NFED)
National Eczema Association (NEA)
National Eczema Society
Epidermolysis Bullosa Medical Research Foundation
Ehlers-Danlos National Foundation (EDNF)
Hidradenitis Suppurativa Foundation
Foundation for Ichthyosis and Related Skin Types (F.I.R.S.T.)
Inconitentia Pigmenti International Foundation
Inflammatory Skin Disease Institute (ISDI)
The Klippel-Trenaunay Syndrome Support Group
Pachyonychia Congenita Project (Palmoplantar Keratoderma)
International Pemphigus Pemphigoid Foundation (IPPF)
American Porphyria Foundation
Pseudoxanthoma Elasticum International (PXE)
Psoriasis Support Canada
Psoriasis Education Program (PEP)
International Pemphigus Pemphigoid Foundation (IPPF)
American Porphyria Foundation
Pseudoxanthoma Elasticum International (PXE)
Psoriasis Support Canada
Psoriasis Education Program (PEP)
National Psoriasis Foundation (NPF)
My Skin's On Fire - Documentary about Psoriasis
National Rosacea Society
Scleroderma Foundation
Scleroderma Research Foundation
Sjögren's Syndrome Foundation (Autoimmune Disorder)
My Skin's On Fire - Documentary about Psoriasis
National Rosacea Society
Scleroderma Foundation
Scleroderma Research Foundation
Sjögren's Syndrome Foundation (Autoimmune Disorder)
Contact Information:
Canadian Skin Patient Alliance
2446 Bank Street, Suite 383
Ottawa, Ontario
K1V 1A8
Sheri Pilon, Program & Services Manager
phone: 613-224-4266
fax: 613-422- 4267
News & Events
Check back here to learn about events coming to your area and about advances in skin disease. Click here to read about clinical research trials related skin disease in Canada.
